Build a kit for the people in your life

Eight audience-tuned, printable PDFs, one for you, ones for the people who support you, and clinical one-pagers for your doctor, employer, or school. Tell us about yourself once and the same personalisation flows into every PDF in the kit.

Who is this for?

Pick the one you need first. You can come back for the others.

For you Orientation and things to carry with you.

For Me A short, honest orientation for someone newly diagnosed with EDS. Appointment script A printable script to bring to your appointment. Written from the EDS community. Flare plan Write this on a good day. Pin it on your fridge or phone. Hand to your support person before the next flare starts. Rox keeps an automatic version up to date for you.

For the people who support you Help the people closest to you understand and show up.

For Family & Friends For people who love someone with EDS and want to be useful, not awkward. For a Caregiver For partners, parents, and primary supporters of someone with EDS.

For the professionals in your life Clinical and institutional one-pagers that get you taken seriously.

For My Doctor A clinical primer for primary care, rheumatology, orthopaedics, cardiology, and adjacent specialties. For My Employer A practical primer for managing or supporting an employee with EDS. For My School For teachers, counsellors, and administrators supporting a student with EDS.

Get your kit

Download the one you picked, or grab the whole set.

Pick who it's for in step 1 and your kit appears here.

Rox keeps a living version of these for you Tracks joint incidents, PT consistency, and the trifecta comorbidities. Get Rox on the App Store →

Build a kit for the people in your life

Who is this for?

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